Meds, Round 3

Course change. I insisted in the fall that we test for Babesia and Bartonella, and my IGenex results finally came in just before the holidays. Turns out I have Bartonella quite clearly, and maybe Babesia (on the borderline between having it and not).

So we’ve stopped the Doxy and switched me over to some Bartonella-targeted meds.

  • Minocycline
  • Clarithromycine
  • Rifampin

I’m also taking some stuff for fungal infections in my gut… specifically just starting on 3 weeks of treatment with Itraconazole.

I was surprised about the results, given the tiny red dots that I have on my torso are usually a symptom on Babesia, and I didn’t think I’d been having many Bartonella symptoms. But, I new doctor I am starting to see as an alternative POV did support the diagnosis of both the diseases based on his obsvervations. So, who knows.

Honestly I’m finding this illness to be a bit boring and tedious. I can’t even get the energy to post more here in my blog about it. Mainly, I just don’t feel like I’m seeing any changes, better or worse, as a result of my treatment attempts. The herxing seems to have mostly subsided, and my pain is just a steady and annoying fact of my life. I know I need to be patient and let them run their course… but how do I know I’m not losing time with ineffectual treatments, as I sit here assuming they are working?

At any rate, the most exciting thing aside from getting new meds is that I upgraded my pill case to a larger size. 💊 I’m taking so much medication right now (in addition to supplements), they were getting crushed in the other case… But perhaps this is just a sign of old age, haha. I mean… my 40th is right around the corner. Isn’t a bigger pill case simply a rite of passage?

Oh also, we decided that we’re going to convert one of our half-bathrooms in the house to an infrared sauna! The space has already been demoed and the panels have arrived, but we need to have some plumping and electrical work before the installation can start. That should be super cool once it’s up and running. I’ll try and post some pictures of the process.

As I mentioned in my last post, I really like using an infrared sauna for detox — especially when I’m on so many medications. I feel like it helps get all the nasty shit out of my body faster. If nothing else, it’s meditative and the warmth feels good especially during cold, winter months. I love ❤️ the idea of being able to start every morning out spending 20 mins in a sauna after rolling out of bed!

Meds, Round 2

I’m a little late in posting this but I’m pretty sure I have zero readers for this blog yet, so it’s no big deal. 🙂

TLDR; I started on my antibiotic about 3 weeks ago (Oct. 22 to be exact). I’m officially taking Doxycycline and a Biofilm agent in addition to the previously blogged-about herbals.

About the doxy… I think I’m having some mild reactions to it (“herx”-ing in Lyme language) but nothing extreme (big relief). Within 24 hours I started feeling really dizzy, especially between my ears, behind my eyes. It was a strange feeling that stemmed more from the brain than the gut. Usually when I feel dizzy it’s related to motion sickness or a lack of oxygen, and is pretty gut-based in sensation. But this was (is?) different. Very brain-related, like neurons aren’t connecting properly in the middle/upper region of my head. And the sensation is that of the ground beneath me moving around (not my body feeling icky). I have trouble following conversations and focusing on things, sometimes feeling like I might just tip over. It comes and goes in waves. So far I’ve been able to work through it which is good… and week 1 was by far the worst so far (although it didn’t help I was traveling that week for work and my sleep schedule got a big wackadoodle. I took my first dose of meds, then woke up at 3:30am for a flight. I then proceeded to sleep 14 hours the next night. Yuck).

I went to some IR saunas at the end of week 1 and middle of week 2. They definitely made a difference… I need to do this more often. The detox effect of sweating that much is really helpful at clearing out the yucky feeling. And although the dizziness still exists today (beginning of week 3), it’s gone down a significant amount. I have it maybe once a day, for shorter durations or less extreme feelings. Up from every day, multiple times a day, for long durations.

I have also noticed that my arm pains are returning/getting worse again, and my psoriasis is starting to flare up… not out of control in the existing spots, but slowly popping up in new spots. Oh and my digestion is ALL OVER THE MAP. But more on this later. I guess it’s normal when you “herx” to have your Lyme symptoms get worse overall so I’ll take this as a good sign.

Initial verdict? This doxy is doing something in my body. I am optimistic this means it’s killing things that need to be killed. So keep on keeping on with your crime-fighting ways, Mr. Doxy my dear.

About the biofilm agent… I was told to add this in at the end of week 2, and go on it for 4 days then off it for 3 days, and so on and so on. I’ve done one 4-day round thus far. I don’t know if it changed anything other than made me get a nasty round of diarrhea for a day. I took some charcoal later that afternoon and had a tall glass of magnesium, and things seem to be back to normal again. The weird part? My doc warned me about diarrhea with the Doxy, and constipation when I added in the biofilm agent. But my experience has been the exact opposite. I got stopped up for a few days in week 1 of the doxy. What gives? I haven’t a clue. But enough on the poop talk. TMI.

The biofilm concept is interesting, and I like the idea of having something in my body breaking it down so that the doxy can get access to the Lyme that’s hiding away underneath it. I can see how much biofilms build up in my aquarium (as an example) so the science makes a lot of sense to me. It seems like a waste to take a med that doesn’t do anything because the thing it kills is nestled under a little protective cocoon.

Last update? I mailed in bloodwork this week to IgeneX for my Babesia and Bartonella testing. Can’t wait to see the results!

 

 

Meds, Round 1

In mid-August, my doctor started me on two herbal drops as a pre-cursor to my IGeneX testing… she wanted to do what she called a “challenged” test where you start treatment beforehand in hopes that it bumps up anti-bodies in the system making some of the strains easier to detect.

The drops I’m taking are:

(links are below to the manufacturer’s website)

I haven’t noticed much of a change other than improved sleep and better consistency with my poo (I’ll spare you details on that). But I also tweaked my thyroid meds at the same time to add in T3 to my NDT… is the better sleep because of the drops or the thyroid? I will assume the poo is better because of the drops at least. So… I think this is good. It’s not making me feel worse. In this game, the absence of bad is good.

Upon diagnosis, she started me on Lauricidin. It’s basically some derivative of coconut oil that comes in these tiny little pellets that you swallow with water. I’m taking this for my HHV6 infection though, not for the Lyme. I’ve been on it for 6 days, a low dose to start (1/4 scoop). Tomorrow I get to increase my dose a little, and will do so for the next ~3 weeks until I reach a “full scoop”.  Verdict after 6 days? Not noticing anything.

We’ll start antibiotics in mid-October after I get through a work conference where I have to give a presentation. She didn’t want to risk me feeling terrible during that period (and there is a risk that the antibiotics will make me feel terrible… it’s called having a Herx-a-something reaction…)

The Jarisch-Herxheimer reaction –often shortened just to “Herxheimer” or “herxing”—happens after you start antibiotic treatment for spirochetal infections like syphilis, Lyme disease, and tick-borne relapsing-fever.

https://www.lymedisease.org/lymesci-herxing/

I hope since my case seems mild I won’t ever have these reactions! But we shall see. Only way to find out is to start taking the meds and crossing my fingers.

So scientific. 😉

 


From Nutramedix, who manufacture my herbals: